Support Organisations
Patient Support by Geographic Area (Please select an option)
National
Australian Meningioma Support Group
Name: Di Pooley and Robert DiGiovanni
Cancer Council Online Community
The Cancer Council Online Community offers people currently living with cancer, cancer survivors, families, carers and the wider cancer community the opportunity to connect, share experiences and find information and support in a safe forum.
Available 24/7 through blogs, discussion forums and support groups, members can discuss their experiences and share stories, tips and coping strategies to help normalise concerns and reduce social isolation.
National Advocacy Service
Cure Brain Cancer Foundation and Peace of Mind Foundation are proud collaborative partners of the National Advocacy Service, which directly assists families with accessing support services including the National Disability Insurance Scheme (NDIS), Centrelink and other government programs.
The service launched on November 1 2021 and we are here to help you with:
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General information & advice (online, phone or face-to-face)
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Connecting you to local support services/contacts within your region
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Applying to the NDIS, Centrelink, Carer Gateway, etc
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Sending you a copy of ‘The Survivorship Diary’ - a new brain cancer resource
If you require the services above or are seeking services for your specific needs, we would love to hear how we can help.
How do I request support from the National Advocacy Service?
- Go to the Peace of Mind Foundation website: https://www.peaceofmindfoundation.org.au/national-advocacy-service
- Click the Apply for NAS Support button on the left of the webpage
- Enter your details and under Support Service Request tick National Advocacy Service
Palliative Care Australia
Palliative Care Australia's website provides a searchable directory for palliative care services across Australia.
Robert Connor Dawes Foundation
Inspired by a big heart and brain, the Robert Connor Dawes Foundation was created in June 2013 in the memory of Robert ‘Connor’ Dawes.
We are battling paediatric brain tumours and supporting brain matters in the areas of research, care and development – to fund the science to end brain cancer and support patients in the meantime.
Music Therapy Program
The Robert Connor Dawes Foundation offers blocks of 10 in-home or online music therapy sessions free to children and young people 25 years and under, Australia wide, who have been diagnosed with a brain tumour. In some cases where music therapy isn't possible or appropriate, we also have a Music Therapy Resource Grant available.
Music is more than just fun and relaxing, it can have a profound impact on our brains. Music therapy is an allied health profession that has been found to improve speech and motor deficits, boost mood, reduce anxiety, enhance quality of life and support young people to express thoughts and feelings. It is non-invasive, uplifting and fun, all of which help the heart sing and the mind heal.
Here is the link to our application page:
Music Matters Grants / Music Therapy / RCD Foundation
Name: Sophia Ali - Community Liaison Ambassador
Phone: 0415082925

