Privacy Policy

Brain Tumour Alliance Australia (BTAA) is committed to protecting the privacy of individuals.

There are occasions where BTAA collects personal information, including sensitive health information, from individuals in order to fulfil its roles of providing support, awareness, and advocacy for those Australians diagnosed with a rare or less common cancer. BTAA complies with the National Privacy Principles set out in the Privacy Act 1988.

Collection of personal information and health information

BTAA collects personal information about its members, Governing Committee members, advocates, senior consumer representatives, consumer representatives, staff and potential staff, stakeholders and other individuals who from time to time contact BTAA for advice or participate in BTAA activities.

The information may include both personal information (such as name, contact details, and membership data) and, in some cases, health information about an individual. For example, health information may be collected where the individual wishes to provide this to support an application for practical assistance to be provided by BTAA.

All personal information is collected with the consent of the individual, and where possible, directly from the individual themselves. At the time of collection, individuals are informed about why the information is being collected, how it will be used and whom it may be passed on to.

At times, BTAA may collect personal information from a source other than the individual (for example, when it is given to BTAA by a third party). BTAA will, as soon as practicable after the time of collection, inform the individual that the information has been collected, how it will be used and whom it may be passed on to. If the information is not required, or the individual does not wish it to be retained, it will be removed from BTAA records.

Use and disclosure of personal information

Personal information held by BTAA will only be used or disclosed for the purpose it was originally collected or for a directly related secondary purpose if the person would reasonably expect this. For example, BTAA may wish to contact an individual to seek feedback on a BTAA activity they were involved in. Personal information will not be used or disclosed for any other purposes without the consent of the individual or unless required by law.

In addition, any disclosure of personal information to third parties (which may include for example government agencies that oversee a particular committee or contract staff) is subject to strict confidentiality agreements between BTAA and the third party.

Security of information

BTAA maintains hard copy files in a physically locked and secure environment and electronic data is password protected. The secure (members only) area on the website is also password protected. The BTAA computer system is protected by a firewall to enhance security.

Website privacy

BTAA collects statistical data about visits to the website including the number of hits per day, the most commonly downloaded files, how many visitors are return visitors, the average time spent on each page, the number of visits each individual makes and their relative activity on the site. The IP address and/or domain name of visitors is recorded. BTAA does use cookies. A cookie is a piece of information that is stored on the individual's hard-drive when they visit the website. If the individual returns to the website it indicates whether they have been there before. This information is used for statistical purposes only in order to assess and improve the BTAA website.

Personally identifiable information is collected if an individual chooses to provide this, for example, by responding via email to one of the contacts provided.

BTAA does not pass on to any third parties personal information collected on its website without the consent of the individual or unless required by law.

Access to, update and correction of information held by BTAA

Individuals are able to access personal information held about them and get it amended if it is incorrect by contacting BTAA at the address or email below.

Any questions or concerns about BTAA's Privacy Policy or BTAA's Privacy Procedures should be directed to: 

BTAA Office
c/- S.H.O.U.T.
Building One
1 Collett Place
Pearce ACT 2607


Date adopted: October, 2014