Patient Support by Geographic Area (Please select an option)
Important changes to Sydney peer-to-peer Support Group arrangements.
Due to study commitments, our facilitator Gerry Tye, is unable to continue leading the meetings on Fridays.
Consequently, meetings have been moved forward to the first TUESDAY of each month.
The meetings will be scheduled at the same time; 10 am to 12 pm, but will be ZOOM ONLY for a period.
Go to our BTAA Sydney Facebook Page, https://www.facebook.com/groups/BTAASYD/ for more details, chats, and information.
Name: Gerry Tye
Cost of a local call 1300 755 632 Monday - Friday 9am - 5pm or email supportivecare@nswcc.org.au
The Cancer Council NSW provides a free national telephone support group held on the FIRST and THIRD Thursdays of each month from 1.30-2.30pm (AEST). This is the opportunity for you to talk with other people living with a malignant brain tumour in a group.
There is also a Telephone Support Group for Carers held on the 2nd and 4th Wednesday of each month 1.30-2.30pm (AEST)
All you need is a telephone, an hour and a quiet space from anywhere in Australia and Cancer Council will connect you to the group.
You need to call 1300 755 632 to find out more and register.
Name: Nicky Cove - Primary Brain Tumour Care - Nurse Coordinator
Phone: 0434565240
Address: Gosford/Wyong Hospitals, PO Box 361, Gosford, NSW 2250
This group meets on the first Wednesday of each month at a central Newcastle venue.
It is an opportunity for patients, carers and family members to share information and to meet in a friendly, relaxed environment. It is supported by a social worker and the Mark Hughes Foundation care co-ordinators.
There is plenty of parking and good coffee and cakes available.
Name: Kaye Duffy
Phone: 0413275853
The Dept of Neurosurgery and Cancer Therapy at Liverpool Hospital hosts a 2nd monthly education and support programme for people diagnosed with a brain tumour.
The meetings focus on various topics and provide opportunities for attendees to share experiences and discuss issues of concern in a supportive environment while enjoying light refreshments. Feel free to bring a support person along.
Dates: 2nd Monthly on Tuesdays
Time: 10 am til 12 midday
Venue: Seminar Room 2 - Education Centre Liverpool Hospital
Name: Theresa Simpson (Oncology Social Worker)
Phone: 0287385224
Name: Kylie Wright (Quality and Accreditation Manager)
Phone: 0287388415
The Mark Hughes Foundation (MHF) is a Non-Profit, Health Promotion Charity formed in Newcastle by Mark and Kirralee Hughes following Mark's diagnosis with Brain Cancer in 2013. The Mark Hughes Foundation's mission is to raise much-needed funds for research, to create awareness, and support brain cancer patients and their families. MHF host an annual Brian Cancer Patient forum in Newcastle as well as fund three Brain Care Coordinators in the Hunter New England and Mid North Coast Health districts.
MHF Funded support recourses include:
CarerWell – for those that are caring for a friend or family member who may not be a close loved one. - https://markhughesfoundation.com.au/patient-and-carer-support/caring-for-the-carer/
MHF Patient Packs - The MHF patient pack is a symbol of hope and support for patients and their families. - https://markhughesfoundation.com.au/patient-and-carer-support/brain-cancer-patient-packs/
Survivorship Diary - The Survivorship Diary, a free resource for brain cancer patients and their families designed for patients, by a patient. - https://markhughesfoundation.com.au/patient-and-carer-support/the-survivorship-diary/
Email: admin@markhughesfoundation.com.au
Address: P.O. Box 417, Hamilton NSW 2303
Quest for Life Foundation has been running workshops and residential programs for people and their families living with cancer for over 30 years.
Quest for Life also provide access to a number of wellness education podcasts by Petrea King and Brigit Busicchia that focus on topics that include grief, life's challenges, relationships, pain, trauma, and wellbeing.
These can be accessed here.
Name: Candice Piper
Phone: 1300941448
Email: info@questforlife.com.au
Address: 13 - 33 Ellsmore Road Bundanoon NSW 2578
North Shore Private Hospital Contacts: 02-84253369
Name: Marina Kastelan (Neuro Oncology Care Coordinator)
Phone: 0284253610
The Neuro-Oncology Information Network “NOgIN” is a support and information group for patients/carers from Westmead Hospital and Westmead Private Hospital who have had treatment for brain tumours. We also welcome any patients/carers from outside our area.
Name: Diane Lear, Clinical Nurse Consultant Neuroscience
Phone: 0408184833
Email: diane.lear@health.nsw.gov.au
Address: Westmead Hospital, Hawkesbury Road, Westmead NSW 2145
Brain Tumour Alliance Australia (BTAA) is the national brain tumour patient and carer support organisation in Australia. It was established in late 2008 by a group of brain tumour patients, and current and former carers. While welcoming the advice and input of specialists, BTAA seeks to represent the brain tumour community from the viewpoint of the patient, their carers, and their families.
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