A brain tumour changes everything — for the person diagnosed, and for everyone who loves and supports them. It can disrupt health, family life, finances and the future, while exposing the gaps in a system that is often complex and hard to navigate.

Brain Tumour Alliance Australia is Australia’s peak advocacy body for people living with a brain tumour, and for the families, carers and loved ones beside them. We were the first organisation in Australia created specifically for this community, founded in 2008 by patients and carers who wanted a national voice that reflected their reality and provided a place for support, connection and advocacy for better care and outcomes.

We fight for better outcomes by ensuring lived experience shapes the decisions that matter most. We engage with governments, influence decision-makers, and work with national stakeholders to drive change in Research and Trials, Clinical Care and Supports.

As the independent convener of the Australian Brain Tumour Collaborative, we help champion shared priorities, coordinated advocacy and a stronger national voice for everyone affected by brain tumour.