Share your Story

Sharing your story helps others feel less alone and raises awareness about the real, human impact of brain cancer.

How your story can make a difference

  • Show people they’re not alone and help them find strength in shared experiences.
  • Raise awareness and help the wider public understand the challenges of brain cancer.
  • Inform advocacy and shape BTAA’s messages to government and health leaders.

Whether you are living with brain cancer, caring for someone, or have lost a loved one, your story matters. Personal stories bring strength, connection and hope to others navigating similar experiences. They can also help change how the community, health professionals and policymakers understand brain cancer.

Guidelines for sharing your story

Your story can help others feel less alone and bring hope to those facing brain cancer. These guidelines explain how to share your experience safely, respectfully and meaningfully.

  1. Be yourself – Write or speak in your own voice. You don’t need to be a professional writer. Honest, personal reflections are the most powerful.
  2. Keep it safe and respectful – Please avoid sharing content that could be distressing to others (for example, detailed medical descriptions or images). Try to focus on your experience, insights and what you’ve learned.
  3. Protect privacy – Only include names, photos or details if you have permission from the people involved. If you mention hospitals, doctors or other services, please do so respectfully.
  4. Length and format – Stories can be short or long. Most are between 200 and 600 words. We also accept short videos (up to 3 minutes) and a few photos if you’d like to include them.

Ready to Share?

You can choose how you would like BTAA to share your story: on our website, in our newsletter, on social media, or in advocacy and event materials. By submitting your story, you give BTAA permission to share it publicly in the formats you select.  You can withdraw your consent at any time by contacting enquiries@btaa.org.au.

BTAA may edit stories for clarity, length or tone, but we won’t change your meaning. We’ll contact you before publishing to confirm you’re happy with the final version.

Complete the Share your story form to send us your story. Once we receive it, our team will be in touch to confirm next steps. If you would like to send us the story via email please use button below.

See our personal stories page to read stories from others who have shared their journeys.

Platforms

Upload a photo to go with your story No Files ChosenAccepted file types: jpg, jpeg, jpe, gif, png, heic, heics. Max. file size: 3 MB

Upload a document to go with your story (if the text area above is not enough). No Files ChosenAccepted file types: pdf, doc, docx. Max. file size: 3 MB

11 + 11 =

Jane’s Story – “I Don’t Know”

I DON’T KNOW - Jane Whitehead Death When will I die? How will I die? What happens after I die ... Wait. I will address Death in its rightful place - at the end of this unfortunate, but true story.Let me start at the beginning.Diagnosis Astrocytoma, IDH-mutant, WHO...

Kristin’s Story

“You think your nurse is dying?” exclaimed my 19-year-old son, who was at my bedside in the Royal Melbourne Hospital ICU in early 2020.

Catherine’s Story

My daughter, Catherine was an avid reader of the BTAA e-News and Magazine, constantly looking for new treatments and information on the latest research.

Diane’s Story – “Watch and Wait”

I have entered a phase on my brain tumour “journey” called ‘Watch and Wait’. Sounds simple? Not when you dig deeper into both the physicality of repeated scans, and the emotional distress it provokes routinely, like clockwork every three months.

Gavin McGill’s Story

About eighteen years ago, after two weeks of occasional headaches, I ended up in hospital. Scans revealed a twenty-millimetre mass inside my brain and I had surgery four days later with a full resection. Pathology revealed a Grade 4 GBM (Glioblastoma Multiforme).