Impact

As Australia’s peak brain tumour advocacy body, BTAA has played a central role in driving major national improvements in care, policy and support. Key achievements include:

Uniting the sector
Led the establishment of the Australian Brain Tumour Collaborative (ABTC) in 2022, bringing nine national organisations together under one coordinated voice.

National advocacy leadership
Initiated Head to the Hill, Australia’s first annual brain cancer advocacy event at Parliament House.

Improving access to treatment
Contributed to successful PBS listings for key treatments including Temozolomide and Avastin. Supported TGA registration of new therapies, most recently Vorasidenib.

Championing supportive care
Advocated for more than a decade for dedicated brain cancer nurse coordinators to improve patient navigation and support.

As Australia’s peak brain tumour advocacy body, BTAA strengthens the consumer voice by sharing trusted information and connecting people across the country.

Comprehensive online information
Our website brings together global resources, support groups, lived experience stories and practical guidance for patients, carers and families.

Regular updates to thousands of Australians
Our monthly e news and biannual magazine keep the community informed with research updates, stories, events and support information.

Representation on national and international stages
BTAA participates in key meetings and forums — including COGNO, SNO and IBTA — ensuring the lived experience perspective is heard in discussions that shape care, research and policy.

For more than 15 years, BTAA has provided trusted, volunteer‑driven support to people affected by brain tumours across Australia. Our services are built on lived experience and designed to meet people where they are.

What We Deliver

• Information Packs – More than 3,000 packs distributed — tailored for adults, parents, young people and culturally diverse communities.
• Support Groups – Active groups in  Sydney, with mentoring and guidance provided to independent groups nationwide.
• Patient Forums – Biannual events bringing leading clinicians, researchers, patients and carers together to share knowledge and lived experience.
• Multilingual Resources — Reliable information available in 10 key languages to support culturally and linguistically diverse communities.