SUPPORT AND RESOURCES

Brain Tumour Alliance Australia (BTAA) patient forums are an opportunity to hear directly from leading researchers and clinicians about the latest developments in brain tumour research, treatment and care. These events bring people together in person to learn, ask questions and connect with others who understand the journey.

This page lists a directory of Groups providing support.

Across Australia, a range of national organisations provide support for people affected by brain cancer. These services offer counselling, practical assistance, financial guidance, peer connection and reliable information to help you navigate the challenges that can arise at any stage.

Brain cancer care coordination is a structured approach to help patients and their families navigate the complex healthcare system after diagnosis. It involves having a dedicated person, often a nurse coordinator or navigator, who connects patients with the right specialists, manages appointments, supports communication between teams, and ensures that care is timely, consistent, and aligned with the person’s goals and needs.

This directory provides access to a range of reliable resources to support you throughout the brain tumour journey. Including fact sheets, booklets, patient guides and care pathways, it is designed to help you find clear information when you need it most.