History
Our History
Before the 2000s, Australians diagnosed with a brain tumour had very limited access to dedicated support. While small informal groups existed, even major cities lacked consistent services, reliable information or a national advocacy voice.
In 2003, Canberra carer Denis Strangman, following the loss of his wife Marg to glioblastoma, helped establish Brain Tumour Australia — the first national support group for people affected by brain tumours. Despite strong community passion, the organisation closed in 2008 due to administrative challenges.
During this time, Denis also co‑founded the International Brain Tumour Alliance (IBTA) in 2005 and served as its inaugural Chair. IBTA has since grown into a respected global organisation representing people in more than 100 countries and advocating internationally for equity, rights and improved care.
The Establishment of BTAA
In 2008, Brain Tumour Alliance Australia was re-established by founding members Matt Pitt (Founding Chair), Denis Strangman, and Susan Pitt. Formally incorporated in 2009 as a not-for-profit organisation, BTAA was created to unite patients, carers, families and support groups across the country
Matthew D. Pitt - Founding Chair
Matt Pitt, diagnosed with a low‑grade glioma at age 19, brought lived experience and a strong commitment to advocacy. His frustration with the lack of information, support and awareness led him into national and international advocacy from 2004 onwards. Matt also contributed professional expertise as a regulatory toxicologist and in medical technology, holding a Bachelor (Honours) in Biotechnology and a Master’s in Public Health
Denis Strangman AM - Founding Secretary and Public Officer
Denis Strangman, a co‑founder of both BTAA and IBTA, was a tireless advocate for the brain tumour community. His contributions were recognised internationally, including a public service award from the Society for Neuro‑Oncology (SNO) and an AM in 2015. Denis passed away in April 2023 at the age of 81.
Susan Pitt - Founding member
Susan Pitt, a breast cancer survivor and trained consumer representative, joined BTAA through her son Matt. With a background in professional writing and public policy, Susan played an important role in shaping BTAA’s early direction and community engagement.
Evolving Into a National Board
Since its inception, BTAA has been powered by volunteers with lived experience. In 2026, BTAA is transitioning from a volunteer Committee structure to a national Board, strengthening governance, strategy and advocacy while remaining firmly anchored in lived experience.
This evolution reflects BTAA’s growth, its national responsibilities, and its commitment to ensuring that the voices of patients, carers and families continue to guide decisions that shape care, research and support across Australia.