Oct 16, 2026 | STORIES
“The waiting is the hardest part” he said. My neurosurgeon was right THE BEGINNING September 5th On Friday September 5th 2026 I saw my doctor. The previous week I had a terrible headache for about 5 days. It was at its worst during a short trip to...
Sep 8, 2026 | STORIES
Kicking the can down the road – Chris Myers That is what we were told when Chris was diagnosed with inoperable terminal Glioblastoma grade 4 brain cancer. Chris was working for Energy Qld as a Senior Analyst Programmer when he started having cognitive...
May 11, 2025 | STORIES
I DON’T KNOW – Jane Whitehead Death When will I die? How will I die? What happens after I die … Wait. I will address Death in its rightful place – at the end of this unfortunate, but true story.Let me start at the beginning. Diagnosis Astrocytoma,...
Jul 1, 2022 | STORIES
“You think your nurse is dying?” exclaimed my 19-year-old son, who was at my bedside in the Royal Melbourne Hospital ICU in early 2020. Surgery had left me unable to communicate with my voice, so I had been trying a different communication method. I would “dictate”...
Jul 1, 2022 | STORIES
My daughter, Catherine was an avid reader of the BTAA e-News and Magazine, constantly looking for new treatments and information on the latest research. Together, we attended a couple of the support meetings in Canberra but the travel became too much her. She donated...
Jun 19, 2022 | STORIES
I have entered a phase on my brain tumour “journey” called ‘Watch and Wait’. Sounds simple? Not when you dig deeper into both the physicality of repeated scans, and the emotional distress it provokes routinely, like clockwork every three months. Watch and...
