Monash University. We want to hear your story!

Jul 8, 2025 | LATEST NEWS

Are you a parent, caregiver, or young person with experience of paediatric low-grade glioma (pLGG) in Australia? As part of a Monash University Honours research project, in collaboration with Ipsen Pharmaceuticals*, we’re developing a Patient Journey Map (PJM) to...

Jane’s Story – “I Don’t Know”

May 11, 2025 | STORIES

I DON’T KNOW – Jane Whitehead Death When will I die? How will I die? What happens after I die … Wait. I will address Death in its rightful place – at the end of this unfortunate, but true story.Let me start at the beginning. Diagnosis Astrocytoma,...

Head to the Hill 2024

Oct 1, 2024 | EVENTS

The 2024 BTAA Head to the Hill event is being held inside the beautiful open courtyards of Australia’s Parliament House on Wednesday 20 November at 8:00am-12:00pm. Join us at this important national event to help us raise awareness of the horrific effects and...

Kristin’s Story

Jul 1, 2022 | STORIES

“You think your nurse is dying?” exclaimed my 19-year-old son, who was at my bedside in the Royal Melbourne Hospital ICU in early 2020. Surgery had left me unable to communicate with my voice, so I had been trying a different communication method. I would “dictate”...

Catherine’s Story

Jul 1, 2022 | STORIES

My daughter, Catherine was an avid reader of the BTAA e-News and Magazine, constantly looking for new treatments and information on the latest research. Together, we attended a couple of the support meetings in Canberra but the travel became too much her. She donated...